The List…

Diagnoses awaiting Genetic Testing suspected:

Hypokelemic periodic paralysis

Ehlers-Danlos (Or other heritable connective tissue disease)

Dystonia

Episodic ataxia (type 2(?))

I am a Zebra. Even when having a full on flare up of Ulcerative Colitis before I was diagnosed, my blood was normal. Full inflammation throughout my body and not one sign of it in my blood. Even my CT scan was completely normal when it shouldn’t have been. I am a Zebra. Inflammation does not show up in my blood. My Rheumatoid factors are completely normal other than a high IgA which I was told, meant nothing.

How does one prove they are ill when their blood is completely normal? So many times I’ve been completely dismissed because of this. Even after explaining that I am a Zebra.

Another very odd quirk is that I have bone inflammation on both femur necks along with bilateral labral tears. Typically, when one has arthritis, the cartilage is damaged. This is seen on xray and arthritis is diagnosed. My cartilage is completely normal. Excellent spacing. And yet my bones are inflamed. I have not one doctor explaining why and what this means. I only know the pain is simply excruciating. My SI joints show degeneration so arthritis is there. Does that explain the bone marrow inflammation in my hips? My hips, often, feel shattered. Completely and utterly shattered, the pain is so intense. And yet, my blood is completely normal. Having Ulcerative colitis, a theory could be seronegative inflammatory arthritis, but only my neck and SI joints are arthritic. No doctor has xrayed my knees in years. They feel like bone on bone in addition to the instability my braces are for.

So I have spent the last several years in so much pain, I’m no longer living but simply existing as my life has been taken from me. My ability to function is gone, except the odd good day that pops up and reminds me of what I’m missing out on. I long for the years I simply battled flare ups and migraines that took chunks of my life each month rather than the day in and day out suffering I deal with now. Though in 2006 and 2007, I spent those two years in a severe POTS flare up with fibro and ME/CFS but not the severe chronic pain like it is now as it was episodic in nature back then.

Waiting on genetic testing is frustrating and time consuming. Even though I’ve waiting 19 plus years wondering what all is going on with me and waiting a few more weeks is really nothing, considering, I just want to know. I just PRAY it’s in my genes so I have confirmation once and for all. I’m 100% that a connective tissue disease is at the root of a lot of my suffering, but not all of them will show up in the genes yet. It’s not heavily researched like other conditions. They’re working on it though.

Dealing with so many systemic illnesses without a definitive diagnosis beyond what I’m diagnosed with make medical care extremely difficult as those conditions are misunderstood and not well taught in medical school. A lot of doctors roll their eyes at the conditions and still think, “It’s all in their heads!” Even though science is showing, it’s physiological.

I’m the Pans positive patient. I never wanted that. The bias in the medical community is mind boggling, even though they are suppose to be taught to squash that bias and do no harm. They are, after all, still ‘practicing’.


Diagnosed Conditions not Visible
:

ME/CFS

Fibromyalgia

Chronic daily headaches

Anxiety


Diagnosed Conditions that are visibly diagnosed
:

Ulcerative Colitis

Interstitial Cystitis with petechia

Migraines

Emphasema

Lung nodules

Brain lesions

GERD with reflux and episodic blood in the stomach

Stricture in esophagus

Bone inflammation in femoral necks bilateral

Bone Marrow inflammation in hip bones

Swollen lymph nodes in groin, upper leg, behind neck (Over one year now)

Enlarged prolapsed uterus

Rectocele- repaired

Hiatal hernia- repaired- now sliding

Appendectomy- necrotic

Gall bladder removed

Aorta at upper limits of normal

Strabismus with excessive floaters and astigmatisms

Tendinitis multiple sites

Kephosis and loradosis “Flat back”

Variable blood pressure with spikes and drops

Tachycardia (POTS) with skipped beats, PVC’s and others

Mitral Valve Prolapse with regurgitation that is progressed

Prior prolapse of other valves with regurgitation self corrected

SI joint that was out of place and pushed back by Physical therapist

Glut muscles that have difficulty activating along with a leg muscle

Repetition fatigue in limbs that is measurable (little exertion)

Joints that are loose

Receding gums with multiple skin grafts that mostly failed

Bicornate uterus and tipped bladder

Short pinky toe

Very narrow wrists can wrap fingers around

Extremely narrow rib cage

Forward tilted hip with one side dropped

Often low potassium, sodium, Vit D, Calcium (once), ferritin

petechia spots on skin

Episodes of bleeding- IV sites, giving birth, spitting blood

Blood clot in umbilical cord (we got lucky)

Both children had very short cords, small placenta and wrapped around neck

Low side of normal bone density in hips

Stretch marks that are excessive for weight and atrophic

Bartholin gland issues- multiple surgeries

Muscle spasms

Fasiculations

Body Twitches

And More….

Living my life through a window’s view..

Hubby made a comment yesterday about one of his work ladies bringing her baby to work. He got to hold and cuddle the little one and he was geeked about it. It stung. I realized I’m starting to feel insecure and jealous and I don’t want to be that person. I’m missing out on even the simple things in life to bring one some happiness. I feel trapped behind these four walls. I see life passing me by and I’m only in my early 40’s. I should be living it up before my 50’s strike. I’ve been ill since my early 20’s with periods of time where I was managing ok but the last, going on 6 years now, have only been a downward sloap with no real periods of remission.

I have so many health issues that they seem to feed off each other, one flaring up the other and making things worse. It’s embarrassing how many conditions affect me. I don’t want to be that person. I am that person. I hate it.  I’ve always wondered deep down if I had never joined the military, if I’d be much healthier today. That was the catalyst. I’m certain of that.  I was pretty healthy before hand and it didn’t take long to start attacking my body, shortly after joining. Was it the vaccines? The abundance of physical activity? Some other kind of exposure? I do know I’m not alone in what I suffer as there are so many veterans going through the same. Maybe we all have a certain genetic disposition that caused us all to express certain genes that might otherwise have remained dormant? I have found that many of us are hypermobile. Many have gone on to be diagnosed with ehlers-danlos or hypermobility syndrome. Is that the link? But not all of them have that.

What we have in common is ME/CFS, fibro, IBS, chronic headaches, and unexplained neurological signs and symptoms. There’s more but that’s what the VA will compensate for. A lot of us also have GERD, other stomach issues, IBD (which they deny the link), migraines, and other problems involving our joints and muscles. Various cancers run higher in veterans as well as MS, parkinsons, ALS, and other problems. I can logically understand arthritis and wearing and tearing of our joints due to all the physical requirements. That makes sense. But what about the rest of it? That’s where things get murky. What do we all have in common? Why do we all suffer so many similarities? Even if the general population were to start having the same health issues at the rate of veterans, we were the first. At least that I’m aware of, so it started with us vets.

So many studies to get to the root of the issue and yet most of that money seemed wasted on studying stress and the human body. Not all of us were put under loads of stress. I guess putting the focus on stress makes it easier to blame the mind that any physical exposures we might all have in common. No government would want to admit to that, but it’s what most of us are thinking.

We will probably never get any real answers. At least not while still walking this earth, or in my case, watching life pass me by out the windows of my home, stuck behind these four walls, and sinking into a funk, wishing myself well again. You can only hold on to hope for so long. As the years pass by, that hope gets heavier and heavier to hold onto. Trying to keep a positive mind frame but when you’re riddled with pain that’s inadequately treated, it has a way of making hope, that much heavier.

My Letter About Opioids

I was once physically active. I was in the military ready to fight for our country and give my life if need be. But I got sick. I’ve been sick since service and getting steadily worse over the last 19 years. The last 5 years have been brutal on me. My life was taken too young. I’m too young to have a handicap plate, says one doctor. I’m too young to have a wheelchair, I’m too young!! Well, disease doesn’t discriminate. Here I am watching my children lose their mother. All the activities I did for my son, I can not do for my daughter. “I want my momma back” says my daughter. She misses our play time, my attention, my cuddles. Don’t touch me, it hurts. I can’t go, I have a migraine. I’m sorry I didn’t cook dinner…again… I have lassitude and standing hurts. I’m sorry we can’t go, I can’t walk and it’s not wheelchair accessible. I’m sorry I can’t play that game with you, I have sensory issues right now and am in a flare up. I’m sorry I can’t take my son to all his special needs appointments, my driving is being hindered and my body is in too much pain to leave the house. I lay here, my upper body not wanting to support me being upright. My frame is a skeleton as my muscles atrophy and my weight is gone. I get partial paralysis when the temperatures drop so I can’t move real well. I live for every few hours when I can take that little pill to allow me to move for two more hours. I have come to rely upon that pill to get on my feet. I still can’t walk far or stand long, but I can do a little bit with that little pill. Imagine what I can do if I had a dose strong enough to knock back most of my pain. Imagine having a bit of my life back again so I can be there for my children and keep them out of trouble, giving them the attention they need as a parent. I don’t know what my future holds or how long I will live to see my kids grow up, but I would like to. I would like to without the pain that cripples me because I’m undermedicated. I have a high metabolism and a high starting tolerance. It’s just how my body was made. I’ve exhausted other resources and opioids work and work well for me. I don’t get high. I don’t get euphoric or even sleepy. I don’t understand how others can abuse them as they do nothing to my mind, only relieve the pain either a little or a lot depending on how much I’m given. I’m tired of being treated like a criminal or druggy for needing a med to survive just like a diabetic who is dependent upon insulin. I need my benzo to sleep as I’ve tried all the others and a safe alternative made me stop breathing. My body is different than others. My benzo stops the muscles that tighten and spasm and cause dystonia like symptoms. It’s the only thing that works as muscle relaxers have no effect on me. I don’t know why. It’s just how I’m made. I’ve taken them safely for years. I don’t take them at the same time and I’m smart with my meds. It’s my body and my right, right? When did others acquire the right to make medical decisions about MY body?
Here it is in a nut shell, I would be more than happy to sign whatever form giving consent to increase my meds to a dosage high enough to combat the pain and give me a quality of living risking death any day. I would rather have some semblance of a life and risk dying from my meds than to live here in agony and risk dying from being unable to tolerate the pain anymore. Where does that leave my kids? My family? I’m the glue that holds them together. I’m in palliate care though see a typical pain management center and yet I still don’t get enough meds to function. I’m not going to ever get better and I’m now watching my own child deal with my pain as it passed down to him as well. He’s a teenager. He’s tried tylenol and NSAIDS (He’s lucky he doesn’t have my mutation that doesn’t process NSAIDS), but they don’t work for his pain. I’m so scared for him. Will he ever get the opportunity to use what has worked so well for me at the right dose? He already doesn’t want to live. He lives for me right now. I can’t imagine what will happen to him when I’m gone. He has no hope for his future and I’m losing hope for mine.
Do you want a productive society? Truly? Like any meds there are risks. Like any med there are benefits. I should have the right to chose what I put into my body and stick with what works and use the appropriate amount for MY body to be productive, to give back, to help society rather than lay here crippled and watch my family fall apart because someone without chronic pain decided they wanted to make my medical decisions for me. I’ll take death and pain relief over this hell my life has become. I’m a veteran and I’m suffering and now my child is is suffering as well. Cannabis might be an option for some, but it is not an option for me. It should be legal for those it does help, but I chose my current med as I don’t get high and it really truly works when at the right dosage. I chose life. For now.

Fighting To Be Believed

One of the hardest things a person can go through, is having to fight to be believed by the medical community for whatever it is you suffer. It’s absolutely shocking how many stories I’ve read where Doctors or nurses yell at their patients, telling them to get up when they can’t walk, or flat out disbelieve the plea being made. It’s even worse when you have family or friends who do the same. I can not, for the life of me, figure out why anyone would ever fake an illness. Who WANTS to be sick? Who WANTS to give up their lives and lay there staring at the walls and be completely unproductive? I sure an hell don’t. In fact, it’s one of my biggest frustrations. I WANT to….. do so many things…. but my body betrays me.

The family and medical communities betrayal is absolutely the worst thing to experience during a time when your plate is full enough with all the disabilities your body is going through. There is absolutely NO justification for it. None at all. Zilch. It is NOT ok. Having invisible illnesses suck on the highest level since we look so normal but we’re far from it. Should I cut my arms in neat little slices to give a visible sign as to the pain I suffer? Learning to let go of it is easier said than done.  And with doctors working FOR US, they really aught to remember that and start taking us seriously. I’m glad I have some doctors that do, but they still think along the lines of ‘we’re all horses’ even though a Zebra stands before them.

I think that’s why some of us jump with glee when we finally have physical proof, such as genetic testing, or some other kind of sign that SHOWS we truly are ill. It also makes some of us want to go back and hit them all upside the head with the paperwork. I know I want to, to smack them in the face with what they failed to consider, or believe, or treat. With many more of us having those rare or uncommon illnesses and diseases, we need to retrain our medical community to start looking into them.  We also need an overhaul of the medical community from the top down. They’re failing their patients.

We should also have more attention brought to the public about how invisible illnesses work and affect us. Awareness of how normal we can look but how badly we can suffer. Maybe then, family will start opening their eyes to the truth and stop looking down their noses and gossiping about how ‘well we look’ and how we must be faking or looking for some kind of attention. It’s simply insulting.

And while I’m at it, please don’t cry to me about your fatigue or your painful hangnail. Most don’t know what true fatigue or chronic pain feels like. And yes, chronic pain patients handle pain differently. Our bodies become use to high levels of pain and learn to function as best as we can. So if we tell you our pain is an 8 while using our phones to read or get on Facebook, yup, we can do that and still be telling the truth. We handle our pain with grace as we suffer it daily and learn our own accommodations to survive.  Some days we might simply be done with it all and just lay there, resting our bodies and recuperating. No, that doesn’t mean we’re lazy. Far from it. Our batteries are drained and we’re recharging them.

I’ve had completely normal vital signs while suffering severe pain. I feel like my body betrays me when this happens as doctors and nurses seemed trained to believe that you have to have abnormal stats in order to be in pain. They need to go through classes on chronic pain and what that looks like. Apparently to doctors and nurses, it simply looks like drug seeking and yet, that is very far from the truth..  Believe your patients peoples! I’d rather give a drug seeker care and attention than to treat a chronic pain patient with suspicion and bias. It’s just not fair or just to those who truly suffer.

 

Yes!! I take Pain Meds!!!

Painpic

 

I recently read a very heartfelt blog in regards to pain management.  Her words could have echoed mine.  It seems that those who take pain medications have become villanised during the recent opioid ‘crisis’ sweeping through this nation.  As doctor’s slash prescriptions across the states and other’s stop supplying all together, where does this leave those who sit here in chronic pain land?

Did you know that studies show less than 6% will abuse their opioid prescription?  LESS than SIX percent!!!  Let that sink in.  I thought we were having a crisis here?  Ok, many people apparently die a day on opioids…  Please enlighten me as to how many of those death incurred were from following their doctors orders and not abusing their medications?  How many?  Why in the blue monkey hell does 94% of the population who take their medication as prescribed have to suffer for those who CHOSE to abuse their drugs?  If you blame addiction being the problem, then you don’t have a crime, you have a mental health crisis for those that do so.

Studies have also shown that those with TRUE chronic pain do NOT abuse their medication and many do not get high or sleepy when on them.  I’m one of those people.  I don’t get high on my pain meds, I get activated instead.  My doc informed that a small percentage of people get energetic on pain meds rather than sleepy which is why it is difficult to take them before bedtime and which is why I do NOT take pain meds at night.  I suffer till sleep takes over.

I’m also a rare patient indeed.  I have found my body to contain a rare double metabolic mutation on my CYP2C9 pathway that is responsible for metabolizing anti-inflammatories and blood thinning medications.  What does that mean?  I can’t take those drugs.  Less than 3% per one study and less than 1% in another study have that mutation.  It’s not well known.  I also happen to be allergic to Morphine, discovered that toroidal has no effect on me and I’ve exhausted pretty much all of the migraine medications available.  I also metabolize other medications differently and tend to have opposite reactions to drugs and extreme sensitivities to many others.  Meaning give me even the smallest dose of some drugs and they will send my system into overdrive with various horrible side effects that don’t tend to go away with time.  Other drugs you can pump me full of and they have no effect, like valium, a long acting benzodiazepine but  give me Xanax, a short acting one and it will make me really sleepy.  I was told that is not how it’s suppose to work, but hey, that’s how it works on ME.  Can you imagine going to the ER in pain?  Hey doc, I need this pain drug, that’s the one that works.  “I’m sorry, you need to leave, your drug seeking.”  I’ve had this experience.  You think maybe I just know what works for my body since it’s my body and I’ve lived in it for 39 years?

Never have I gone to the ER or the doctor asking medications for any reason other than as needed and intended.   I’ve taken opioid medications on and off over the last 17 years and not once have I abused them.  It wasn’t till my last flare when I was knocked off my axis and having to live in unending debilitating pain and muscle fatigue that I started using opioids full time.  But opioids don’t work for chronic pain says very few people in true chronic pain….  But the doctors seem to believe that.  What about the patients.  You can see article after article saying that these meds do not work for that and yet all the comments from real people say they do.  Opioids do NOT work for fibro.  Well, I have that too and it damn well reduces the pain enough for me to function so it works for ME!

TMI, but just to give you an idea of the reality of my life:  I suffer from: ME/CFS (Myalgic encephalomyelitis or Chronic fatigue SYNDROME), Fibromyalgia, Migraines, Chronic headaches, IBS-D, IBD (in remission), Interstitial Cystitis (A fun one), Tendonitis in many locations, esophageal spasms,  dysphasia, (constantly inhaling my own saliva and choking), GERD, Gastritis, significant ovulation pain that can drop me on my knees, painful periods, restless body….   Is that enough for you?  MOST of those cause me pain.  What I found is that opioid medications have helped ME with those conditions, almost all of them.  One drug for many problems. I’m also on a medication for nerve pain.  I have joint pain in almost all of my joints either all together or flaring up in various places throughout my body at different times.  And I haven’t even mentioned my hip pain. The most excruciating place on my body.  Imagine feeling like your groin bones are being twisted on and off all day long.  Imagine trying to walk when each step flares that pain up.  Imagine being in tears in bed at night because you can’t get comfortable due to the pain! No position helps unless I’m sitting criss cross apple sauce in my chair. And due to a failing medical community (in my opinion), I have yet to even be allowed an MRI to investigate it even though I’ve asked many times. Imagine having to buy your own cane as the pain is so bad.  I have bone pain.  I have nerve pain.  I have PAIN.  InvisibleIllnessElianaMeir Picture Created by : Eliana Meir

I also have fatigue.  Due to ME/CFS and fibro, I have fatigue.  Imagine going to a pain management doctor seeking pain meds for ME/CFS.  Most only know the name of Chronic fatigue syndrome and most of them that do, have very little knowledge of the condition as it is not typically taught in med school, very little money has been given for research for a condition that has effected a portion of people around the world.  As one pain doctor told me, “I would NEVER have put you on pain meds for chronic fatigue!”  I knew right then she was ignorant to my condition.  I’m not tired.  That is not the fatigue I suffer from.  The majority of those who hear those words, CFS, ASSUME I am overly tired and most likely lazy.  Let me give you a little idea of what I mean.  My muscles will feel like I have the flu without having the flu. Can you imaging having aching flu pain in your muscles all the time?  My muscles will fatigue so easily that if I push it, I will be paralyzed until my muscles have had enough time to recoup the energy it’s lacking.  It hurts.  Imagine holding your arms or legs out for hours at a time.  You know the quivering shaking painful feeling that builds up in the muscles the longer you hold them out there?  THAT is fatigue! So people can assume I sit here being lazy and ‘tired’ with my unknown condition and make judgements on me based on their own misinformed mind.  Muscle fatigue HURTS.  It will flare up just walking to my mail box.  Try going grocery shopping!  One time I was determined to trim a few branches (thin ones) that were growing and hitting our roof.  I sat on the roof with some tree trimmers, clipping the little branches until my fatigue was building up.  I was curious what would happen if I kept going.  Well, I learned.  I won’t do it again.  My arms became paralyzed.  I couldn’t use them. I couldn’t hold anything in my hands, I could lift them up, they flopped like a fish and I sat there on my chair (with help getting inside) for over an hour as the feeling gradually faded and I could use my arms again.  This, again, is muscle fatigue.  Now imagine that in your legs when you’re trying to go grocery shopping or any length of walking.  Now you know what I suffer.  I have a wheel chair for events that require a lot of walking as I wouldn’t be able to attend otherwise.  I am mostly housebound and when I’m not, I pay for those times I leave my home.  It can be paid for days while my muscles work to repair themselves.  Opioids have helped me with this.  They take away from the painful heavy feeling that comes on from use of my limbs.  I still have to pay for it, but it allows me to leave my home and attend my chores, cook dinner, vacuum, and just LIVE. I want to give a shout out to Jennifer Brea for being brave and bringing awareness to our condition by creating the documentary called Unrest! In limited theaters now and free on PBS in January.  I’m so proud of her!

So please tell ME how opioids don’t work for these kinds of things?  Do you live my life? You know what it’s like or how much better my life is managed when I have a medicine that actually does work for me?

The regulations that have come down in regards to opioids are not helping patients. In fact, it’s harming them. If they think the objective is to stop abuse, they need to know that they will only create more abuse by taking true pain sufferers off of the medications that reduce their pain.

If a person is going to abuse a drug, they will still abuse a drug even if it’s taken from them. They will just find something to replace it. Stopping true pain sufferers from having a medication that works for them will only create more pain and more addiction as they seek out alternative sources to stop the pain. This is my body. I have to live with it. Why can I not chose what to put in it? Why can I not have a say in my own healthcare? Why are people being left to suffer and told to see a shrink, that will help with the pain.

Not only do we deal with doctors judging us, but pharmacies as well. It’s not the first time I’ve been looked at like I’m doing something wrong. They too hold strong opinions without knowing your history. It’s a sad world when one finds something that works, and yet it has such a strong stigma attached to it. If I did NOT have my opioids, I would be living illegally or would be bed bound. I have two children to take care of. How am I suppose to do that from my bed, riddled in pain and suffering? I’m hearing the VA is stopping the use of opioids. Many got cut off cold turkey after long term use. One of those people from our group committed suicide. The pain is real. The support is lacking.

What studies are finding is that even though opioid use is down (I wonder why, hah) the crisis is getting worse.  People are left crippled in pain, others are turning to illegal drugs, thus making the situation worse, and even more alarming is the rise in suicides taking place due to the pain being too much for people to bare.  They are creating an even bigger crisis!  Doctor’s that DO want to help patients are being made to jump through hoops in order to do so.  They are on a watch list and as a patient, you can only pray that the hammer doesn’t come down on your doctor’s head leaving you existing like those who have already been cut off and drowning in pain.  Patients are being passed around from doctor to doctor as each tries to get the other to prescribe the pain relief needed but won’t do so themselves due to fear of this barbaric system.

Another major point is that opioids can cause physical dependence.  This is one of the reasons sited for stopping the use of opioids.  It will be a challenge getting off of those drugs in the future.  Some will build a tolerance to the drug and will need to continually increase it to achieve pain relief.  I agree that this is an issue.  But please tell me what alternative method of pain relief will NOT cause the very same issues they blame with opioids?  Do we not become dependent on Gabapentin, Lyrica, Cymbalta, and other anti-depressants they’re passing out like candy in hopes of relieving some pain?  Have you actually read the studies on those drugs?  Essentially, per one study on Gabapentin, 30% of patients achieve pain relief on this drug.  Typically going from a 7 to 8 level pain down to a 4 to 6 level pain with use.  Not many actually look at those numbers.  You may very well be in the 70% that has little to no relief.  Also true is that many have to continually increase the dosage to maintain pain relief.  And getting off of this drug!? Wow, the side effects of reducing the meds or even being on them are intense.  How is this different from opioids?  I was on Cymbalta and it did nothing for pain, in fact it was the WORST drug I have ever had to get off of.  I was enraged, full of anger, dizzy, felt drunk, nauseated, and suicidal even reducing this medication at the slowest possible rate I could.  It was ugly and I will never touch that drug again.  I tried gabapentin at one pill a day at 100mg.  Anyone taking Gaba will know that that is minuscule compared to the 3800mg most will end up taking.   One pill and I woke up with swollen eyes that were oozing liquid, dizziness, blurry vision, and chest pain.  Can you imagine had I taken a typical starting dose?

So my point is that we become dependent on most drugs given.  Your body adjusts to the chemicals it’s taken and getting off even the simplest drugs like Nexium will cause withdrawal in some form or another.  Our body has to readjust to the medications being taken away from our system.  So why I can’t I chose which drug I want to risk?  Why can’t I have a say in what I chose to put in my body?  Especially when I know what WORKS for me?

The stigma is real, the pain is real, and the problem is getting worse.  The pendulum has swung in the opposite direction and it’s far worse than it was before.  Because we are left suffering.  No quality of life.  I’ve made the decision that quality is much better than quantity.  It should be my RIGHT to chose that.  We should not be left to suffer.  What’s the point in asking a person’s pain level if they don’t care to correct it?  So here I sit, in pain as I wait for my next prescription, putting me back on my prior dosage after dropping to try something new that did not work for me.  So because of the laws, I can’t get relief now.  I have to wait two weeks for my next allowed time to fill so I can get the relief needed for my pain.  Today is my daughter’s birthday party.  I can only hope that my medication will get me through so I don’t have to suffer in front of others and I can enjoy her day as I count down to the day I can get a bit more relief again.

 

The link to Unrest:  https://www.unrest.film/

 

For now, I’m going to publish this.  I will pull up the studies and add them to my blog when the time allows as I need to now focus on my child and making her day as special as I can.  I will add them though.  They need to be seen.

 

https://medlineplus.gov/magazine/issues/spring11/articles/spring11pg9.html

http://europepmc.org/articles/PMC4026559

http://ajph.aphapublications.org/doi/10.2105/AJPH.2017.303906

https://www.researchgate.net/publication/262695649_The_damage_done_by_the_war_on_opioids_The_pendulum_has_swung_too_far